Comments on: The Tummy Blues

By: Stefanie Sacks

Stefanie Sacks — Sun, 04 Apr 2010 23:42:34 +0000

Thank you all for your supportive words. I am lucky enough to have an incredible team of trusted experts and colleagues who are helping me along this journey with Jack. One step at a time and if you want to know how things pan out, feel free to e mail me directly.

By: Cheryl

Cheryl — Sun, 04 Apr 2010 15:58:39 +0000

Just chiming in that even if the celiac’s test results are negative, your son can still have a gluten sensitivity. It actually took me at least a month of eating gluten free to start feeling better. Good luck!

By: Barbara

Barbara — Sat, 03 Apr 2010 03:31:49 +0000

Don’t believe the blood tests…several members of my family have celiac and blood tests were negative. It is good to get the gene test to see if he has the gene for celiac and if not, you can truly rule it out…

By: Julie Flakstad (Klingenberg)

Julie Flakstad (Klingenberg) — Fri, 02 Apr 2010 19:58:13 +0000

super interesting – I feel like Felix complains a bit of tummy aches at night and does have some circles in eyes but never thought about it – hmmmm – will keep reading

By: Kathryn Bareket

Kathryn Bareket — Fri, 02 Apr 2010 14:44:09 +0000

Hi Stephanie,
Two of my four children have Ulcerative Colitis. We were blessed to have found Dr. Joel Fuhrman (part of the blog possee)He reverses and prevents disease through high nutrient diets. Check out his November 2004 Newsletter(on his website) which talks about Autoimmune diseases. My 19 year old son has reversed his UC (through juicing, blending etc)and is amost completely off all medications (after 7 different meds and a 2 year struggle)He has literally saved our family! I do not think switching to gluten free products that are still processed food will help your son in the long run….

By: Lisa Deanne Smith

Lisa Deanne Smith — Fri, 02 Apr 2010 10:58:51 +0000

Just make sure that you also have your child tested for intestinal parasites as well. My daughter had similar symptoms and was diagnosed w/ Leaky Gut. She had a Food Specific IgG Antibody Assessment Blood test done and found that she was sensitive to wheat, gluten, dairy, eggs and soy (so all are removed from her diet for at least six months). But I decided to also get her tested for parasites and sure enough she tested positive for Dientamoeba Fragilis. Apparently this amoeba is often the underlying cause for Leaky Gut, Food Sensitivities and Irritable Bowel Symdrome.

By: Cathy (Miss Melody)

Cathy (Miss Melody) — Fri, 02 Apr 2010 02:10:56 +0000

Tell Jack Miss Melody is sending him much love and songs to make his tummy feel better. He is a doll!!!

By: Patti Baldwin

Patti Baldwin — Thu, 01 Apr 2010 03:25:56 +0000

Stephanie, I would so much like to keep up with your progress. My 14 year old (female) is having similar issues. Like your son, blood test all came back negative. Would love to not have her go through upper GI or colin testing, but fear this may be the next step. Please keep in touch if it’s not too much to ask. I hope your son feels better real soon. ~Patti

By: Stefanie Sacks

Stefanie Sacks — Thu, 01 Apr 2010 00:35:32 +0000

Thank you all for this. We are at the beginning of this journey. I wanted to share for such irony that what I do for others I have to do for my son (did it for myself many years ago too so know it intimately). I do have gene for celiac thus am not yet 100% convinced that he is clean. But first logical step is to go elimination, see where it takes us, then additional testing if need be. One step at a time. And, thanks for info on allergytx. As far as Alcat, most integrative practitioners that I work with stand by the IgG and the IgE allergy tests. Not the Alcat.

By: Kristin

Kristin — Wed, 31 Mar 2010 15:43:02 +0000

Just an FYI, you CAN test negative for Celiac via bloodwork, but still have it. My mother and I both had this happen. However, you cannot have Celiac if you do not carry the gene for it-this rules Celiac out with 100% accuracy. You can get him tested for the “Celiac gene” independently through a lab that does this with a cheek swab (through the mail). Or, if you have a doctor that will work wih you (most do not), they can specifically order it. I just wouldn’t want you to miss a very important possible diagnosis that is so easy to slip through the cracks! Good luck!